Sunday, September 11, 2016
11am – 3pm
Flourtown Country Club
150 McCloskey Road, Flourtown, PA 19031
The entire community is invited to attend this family-friendly, fun-filled event! There will be many entertaining things for all ages, including:
- Star Wars characters
- raffle baskets
- silent auctions
- 50/50 raffle
- a tattoo station for the kids
- DJ and dancing
Tickets are $15 for adults, $10 for children 2 and up, and children under 2 are free. Pay at the door, buy tickets in advance here, or send checks to Fighting for Their Future address below.
The goal of the event is to raise awareness of Progeria and money for the Progeria Research Foundation (PRF) so that they continue their research in hopes of finding a cure. Thanks to PRF, Nathan and Bennett have been participating in PRF’s clinical trial. It is our hope that that PRF is closing in on a cure for this rare and devastating disorder. PRF has made amazing progress in a short amount of time, but time is of the essence for children with this disorder.
If you are unable to make it to the event, you can help up by making a donation at nathanandbennett.org, or making a check payable to Progeria Research Foundation and send to:
PO Box 641
Flourtown, PA 19031
The ultimate goal in all this organization does is to FIGHT FOR THEIR FUTURE, so that Nathan and Bennett can live long, healthy lives. They will only achieve this through funding research that finds a cure in time to stop the progression of Nathan and Bennett’s disorder.
Thank you to Michelle Kirschner for providing us the information about this event!
Care to learn a little more about Progeria? Watch the HBO Documentary Life According to Sam. It is quite good!